Wednesday, February 19, 2014
Now, that's partially because we've been really busy, and partially because I've been going through some "personal issues", and partially because - well, let's be honest - I didn't really feel like I had anything worthwhile to say.
Then I realized that when I first started this blog last summer, my intent was to share my experiences / life with an Autistic child. That maybe, I could reach someone in a similar position and give them some insight or hope. Or that (even better) someone who has been where we are now might reach out and say "Hey. This worked/didn't work for us. FYI."
Since I posted last, we've had a whirlwind of change in our family. It's going to take me a while to backtrack and put the pieces together, but I am going to do it. For me, and for you. Because if you've taken the time to read this, I hope I have something valuable to share. Hang in there with me, ok?
Tuesday, November 5, 2013
Tuesday, October 22, 2013
Thursday, September 26, 2013
Sunday, August 25, 2013
Wednesday, August 14, 2013
Checking in, we are having a good summer! My eldest daughter (20) is living with us now, and Nyx adores Sissy! (still won’t say Mama, but I think that’s an “m” issue, nothing personal!). Her language and social/imaginative stuff is really coming along steady now, we see daily improvement. Of course, the closer we get to her 2nd birthday the more we are wading into “Terrible Twos”, but thus far it’s not too awful.
So we met with our OT this morning and she filled us in on how our Kickstart program works. We have 3 sessions with her and 3 with the SLP, and then one with both of them together. These 7 sessions are for them to do a really thorough assessment and offer some guidance as we go, then they turn us over to the Parental Coach (who has OT and SLP training), for 10 weekly sessions where we work through the program step by step based on their recommendations.
At the end of that 10 weeks, we get monthly follow-ups until we get picked up by the public system; we can also continue as much private therapy as our insurance will cover. So we’re not left hanging, which is good to know!
Our OT is very nice, Nyx took to her right away and even hugged her when it was time to go! I feel really optimistic that this team is going to help our family tremendously. :D
In 2 weeks we meet the director of the special preschool for ASD kids; they only have 9-10 spaces so we’re really hoping to get a spot for January, which will follow closely on the end of the other program. Fingers crossed - I think it will be so great for her and I am really stoked at the idea of 3 hours/day, 5 days/week of “off duty” time.
Oh, and and and! We’re moving next week to a big beautiful house with a fenced yard and basement playroom and Nyx will finally get her own room/bed! She picked out her own sheets - pink and green - which go with NOTHING else in the room, but she wanted them and said so! I almost cried in Wal-Mart, I was so happy. :)
Oh, and A.J. Jenkins is my new hero. He does kids' songs for a YouTube channel (which I've forgotten the name of, but you can look him up by name), and they are FANTASTIC! Our favourite is "Butterfly Song 2", which teaches colours and is soothing and gentle - great for bedtime.